When I first met her, she was very quiet. A shy smile covered her pale face. She looked like a pearl. I met her twenty days before the expected "End of the world". For her, the world had ended long before. Her name reminded me of a flower in a very green garden. She just sat there, listening to the stories of other strangers, who had gathered to share their knowledge. Knowledge about how it feels when your own body attacks you. When cells inside your body become your worst enemies. When there is evil living inside your brain, your kidney, your lungs...
I used to watch a TV-show, where the main character, the coolest Doctor ever used to say: It's not Lupus. I always found it funny, because it never was Lupus in eight seasons of the show. When I got my diagnosis, the neurologist started saying: It's not Lupus! (I smiled, I knew it never was Lupus...) But I had the impression, I should be very glad, even though I had no idea what this meant.
But sometimes it is Lupus. The flower-named-lady who reminds me of a pearl has Lupus. And after talking to her, I felt I'd met a hero. She smiles while in constant pain! She speaks of love and hope, while waiting to die. She shows pictures of her beautiful children. The little boy, whom she had to let go because she can't take care of him anymore. She's got a gentle wit in the corner of her eyes. As if she was saying: just wait and see! I'm gonna be fine. She fights for her life. I met Wolverine. The Lupus-Lady. A hero.